I would describe my flare-ups as “feeling like I have no bones in my body”. I asked on social media recently how do you describe your flare-ups. Here is the most amazing compilation of what you said. They were so good and descriptive I decided to pull them all together in one place. This is valuable – it certainly made me feel like I wasn’t alone in these strange feelings that are so hard to explain to someone who does not experience flare-ups.