What is coat hanger pain?

Coat hanger pain is a pain in the neck and upper back, specifically the suboccipital and paracervical regions. It has been described as a “charley horse” kind of sensation in the back of the neck and shoulders. This pattern mimics the shape of a coat hanger with the hook in the neck and the body spreading out across the upper trapezius muscles and shoulders.

What is Self-Compassion and why is it so important?

Self-compassion has been studied in various contexts in a wide range of populations and is linked with positive mental health consistently.

Headaches in Ehlers-Danlos Syndromes

Discover the link between Ehlers-Danlos Syndrome and headaches. Learn about causes, such as upper cervical instability, and find effective treatment strategies.

Nociplastic Pain and the Sensitive Nervous System by Professor Leslie Russek

Nociplasitic pain is due to sensitive nerves that have changed to become better at processing pain. This pain needs to be managed quite differently than “Issues with the Tissues.”

Managing Nociceptive and Neuropathic Pain by Professor Leslie Russek

Our previous post described the 3 types of pain: Neuropathic, Nociceptive, and Nociplastic. Knowing which type(s) of pain you have can help you manage pain more effectively. Think of it like taking your car to the mechanic – if they replace the air filter when you have a flat tire, it won’t fix the car. You have to address the correct problem. Similarly, different types of pain are managed differently. 

The 3 Types of Hypermobility Pain by Dr. Leslie Russek

Pain is a signal from your brain that it perceives danger. There are 3 types of pain: nociceptive, neuropathic, and neoplastic. People with hypermobile Ehlers-Danlos Syndrome or hypermobility spectrum disorder (hEDS/HSD) may have any or all of these types of pain, and the relative contributions may vary from day to day or hour to hour. 

Relationships and Chronic Pain

I recently did a post about pain management. Someone raised the question on the post of ‘how can I communicate my pain to my partner effectively?’

The Lonely Chronic Illness Life

Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.

What people don’t see when you live with a chronic illness

What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.

Raising EDS Awareness with Bob and Brad

I am delighted to have teamed up with the most famous physical therapists on the internet (in their opinion of course) – Bob and Brad. If you know them, the theme tune to their famous YouTube channel is probably running through your head right now.