The Zebrastrong Blog

Managing your pain starts with learning what works for you, your body and your lifestyle. That’s why my blog is about more than techniques for managing pain. Here you’ll also find strategies for coping with the emotional and social aspects too.

The EDS Diet by Lorna Ryan

We all consume food and exist in a world where opinion and advice on diet is freely shared. The public is pleased to share tips. Family wishes to impart wisdom. Professional patients keen to share their n=1. Healthcare professionals sometimes slide out of scope to offer recommendations. And no more so than in the niche arena of Hypermobility & Ehlers-Danlos syndromes.

Rib subluxations are common in hypermobility

I know it can be a common thing in hypermobility and it is very painful. It can make us anxious about exercising as we fear a subluxation. Some people have even been told by some medical professionals that a rib subluxation is physically impossible – but I think if you have hypermobility you may disagree with this.

Sleeping with hypermobility: A comprehensive guide

Whilst much of the discussion around hypermobility and EDS focuses on movement, a common source of anxiety, frustration and stress for those living with such conditions comes from the other half of our lives – sleep.

Understanding shoulder hypermobility

Almost every client I’ve worked with has problems with their shoulders. 4 in 5 people with symptomatic hypermobility have shoulder problems (1). Even in the general (not necessarily hypermobile) population, it is the most commonly dislocated joint in the body (2).

Understanding flare-ups in EDS

Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for the sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

Understanding Hypermobility Foot Mechanics and Pain Management

I always start at the feet.

The foot needs to be stable and mobile at the same time for good foot mechanics. It is super important to understand the relationship between the foot and the rest of the body. The foot will impact the knee, hip, lower back, and upwards from there. Even asymptomatic hypermobile feet and ankles can contribute to pain all the way up the body (1).

What is coat hanger pain?

Coat hanger pain is a pain in the neck and upper back, specifically the suboccipital and paracervical regions. It has been described as a “charley horse” kind of sensation in the back of the neck and shoulders. This pattern mimics the shape of a coat hanger with the hook in the neck and the body spreading out across the upper trapezius muscles and shoulders.

What is Self-Compassion and why is it so important?

Self-compassion has been studied in various contexts in a wide range of populations and is linked with positive mental health consistently.

Headaches in Ehlers-Danlos Syndromes

Discover the link between Ehlers-Danlos Syndrome and headaches. Learn about causes, such as upper cervical instability, and find effective treatment strategies.

The Link Between Hypermobility, Autism and Anxiety

Discover the complex connection between hypermobility, autism, and anxiety. Delve into how autism presents differently in women.