The Lonely Chronic Illness Life

Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.

What people don’t see when you live with a chronic illness

What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.

Raising EDS Awareness with Bob and Brad

I am delighted to have teamed up with the most famous physical therapists on the internet (in their opinion of course) – Bob and Brad. If you know them, the theme tune to their famous YouTube channel is probably running through your head right now.

Living with Ehlers-Danlos – A Life in Two Halves

Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day.

Hypermobility Flare-Up Management

Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

Feeling Accepted With A Chronic Illness

When I attended my first EDS The Ehlers-Danlos Society conference in Las Vegas in 2017, around 50% of my clients had EDS and hypermobility with pain. I was kindly invited to speak by Lara Bloom CEO of The EDS Society.  I had just released the first online hypermobility course, Strengthen Your Hypermobile Core.

The Neglected Stress Impact of a Chronic Illness

“Psychological factors can trigger a breathing pattern that might be appropriate to an emergency situation, when no such emergency exists”. This is an extract from a book on breathing pattern disorders. I became so interested in breathing patterns the more I worked with our hypermobile community. It’s now a passion of mine and it is why breathing is the number one principle in my Integral Movement Method for Hypermobility. Breathing comes first. Movement second.

How do you explain your pain to others?

September was Pain Awareness Month. It’s taken me a while to put pen to paper because this is such a huge subject. I wasn’t sure where to start.

Small steps: discovering movement when you live with chronic pain

Encouraging someone who lives with chronic pain to ‘get moving’ could sound like a misguided, insensitive piece of advice. However, throughout my years as a professional Pilates and movement coach (not to mention during my years of ill health) I’ve seen time and again the impact that the right movement can have when it comes alleviating the symptoms of chronic pain.