Managing Ehlers-Danlos Syndrome through Exercise
Estimated reading time: 7 minutes Have you been told to exercise to help manage your EDS or HSD? Perhaps you have been given no instruction on how to exercise with this condition. Or perhaps you’ve been told to just do pilates or go swimming. Or maybe you’ve been sent to a physical therapist who doesn’t understand hypermobility and makes things worse?
Understanding Hypermobility Foot Mechanics and Pain Management
Estimated reading time: 8 minutes I always start at the feet.
The foot needs to be stable and mobile at the same time for good foot mechanics. It is super important to understand the relationship between the foot and the rest of the body. The foot will impact the knee, hip, lower back, and upwards from there. Even asymptomatic hypermobile feet and ankles can contribute to pain all the way up the body (1).
The 3 Types of Hypermobility Pain by Dr. Leslie Russek
Estimated reading time: 2 minutes Pain is a signal from your brain that it perceives danger. There are 3 types of pain: nociceptive, neuropathic, and neoplastic.
Thanks for sticking with me when things got tough
Estimated reading time: < 1 minute “Thanks for sticking with me when things go tough”. I received this at the end of an email from a lovely EDS client. I work with some very complex cases. There are always going to be ups and downs. A condition like EDS or HSD is never linear. I am prepared for the unexpected.
Should I Squeeze my Glutes when I exercise with hypermobility?
Estimated reading time: 2 minutes Squeezing, pushing, pulling – all words I try to avoid when teaching my hypermobile clients. Why – because they tend to put more tension into the body rather than helping someone move with ease and less pain.
Relationships and Chronic Pain
Estimated reading time: 4 minutes I recently did a post about pain management. Someone raised the question on the post of ‘how can I communicate my pain to my partner effectively?’
The Lonely Chronic Illness Life
Estimated reading time: 2 minutes Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.
What people don’t see when you live with a chronic illness
Estimated reading time: < 1 minute What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.
Living with Ehlers-Danlos – A Life in Two Halves
Estimated reading time: 2 minutes Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day.
Join my new podcast – Finding Your Range. Hypermobility and Chronic Pain Uncovered.
Estimated reading time: < 1 minute I never imagined I would be speaking openly on social media and interviews about my pelvic floor history or recurrent UTIs due to mast cell activation. My upbringing was such that certain things are private and definitely not a topic of conversation. And yet here I am. The reality is this is what life can be like with a condition like Ehlers-Danlos Syndrome.
