Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ -...
What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night...
Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day. But I held...
I’m not sure if it’s more prevalent in the hypermobile community but I see a fair amount of Plantar Fasciitis in the clinic. This is a painful inflammatory condition of the plantar fascia under the foot. This fascia runs from the heel to the toes....
What does the word Exercise mean for you? Does it fill you with dread and anxiety? It is time that narrative changed for the community? Defying the odds: I’m never one to tell someone they should stop doing something they love. I believe...
I never imagined I would be speaking openly on social media and interviews about my pelvic floor history or recurrent UTIs due to mast cell activation. My upbringing was such that certain things are private and definitely not a topic of conversation. And yet...
“Psychological factors can trigger a breathing pattern that might be appropriate to an emergency situation, when no such emergency exists”. This is an extract from a book on breathing pattern disorders. I became so interested in breathing patterns the more I worked with our hypermobile...
I hope you are safe and well during these unusual, challenging times. I have been thinking of ways I could help to keep you active and enjoying movement safely at home. I am sure your regular exercise activities and classes are closed. Where do...
What does zebrastrong mean to you? I remember a time when the thought of moving and living pain-free was just a thought. I was in pain, fearful of movement and frustrated at trying many options without success. Having worked for over ten years with Hypermobile and...