The 3 Types of Hypermobility Pain by Dr. Leslie Russek
Pain is a signal from your brain that it perceives danger. There are 3 types of pain: nociceptive, neuropathic, and neoplastic. People with hypermobile Ehlers-Danlos Syndrome or hypermobility spectrum disorder (hEDS/HSD) may have any or all of these types of pain, and the relative contributions may vary from day to day or hour to hour.
Thanks for sticking with me when things got tough
“Thanks for sticking with me when things go tough”. I received this at the end of an email from a lovely EDS client. I work with some very complex cases. There are always going to be ups and downs. A condition like EDS or HSD is never linear. I am prepared for the unexpected.
Should I Squeeze my Glutes when I exercise with hypermobility?
Squeezing, pushing, pulling – all words I try to avoid when teaching my hypermobile clients. Why – because they tend to put more tension into the body rather than helping someone move with ease and less pain.
Relationships and Chronic Pain
I recently did a post about pain management. Someone raised the question on the post of ‘how can I communicate my pain to my partner effectively?’
The Lonely Chronic Illness Life
Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.
What people don’t see when you live with a chronic illness
What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.
Living with Ehlers-Danlos – a life in two halves
Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day. But I held a full-time job in Human Resources, studied at university after a full day at work for my Master’s degree and arrived home at 10pm at night. I’d get up the next day and do it all again. Looking back, I can only imagine doing this lifestyle.
Hypermobility and Plantar Fasciitis
I’m not sure if it’s more prevalent in the hypermobile community but I see a fair amount of Plantar Fasciitis in the clinic. This is a painful inflammatory condition of the plantar fascia under the foot. This fascia runs from the heel to the toes. It is typically worse in the mornings when the plantar fascia has stiffened overnight, and movement gradually improves it during the day for some people.
The truth about exercising with hypermobility and Ehlers Danlos
What does the word Exercise mean for you? Does it fill you with dread and anxiety? It is time that narrative changed for the community?
Join my new podcast – Finding Your Range. Hypermobility and Chronic Pain Uncovered.
I never imagined I would be speaking openly on social media and interviews about my pelvic floor history or recurrent UTIs due to mast cell activation. My upbringing was such that certain things are private and definitely not a topic of conversation. And yet here I am. The reality is this is what life can be like with a condition like Ehlers-Danlos Syndrome.