Living with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ -...
What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night...
I am delighted to have teamed up with the most famous physical therapists on the internet (in their opinion of course) - Bob and Brad. If you know them, the theme tune to their famous YouTube channel is probably running through your head right now. My...
I’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award. I was presented with the Community Champion Award for...
Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day. But I held...
I’m not sure if it’s more prevalent in the hypermobile community but I see a fair amount of Plantar Fasciitis in the clinic. This is a painful inflammatory condition of the plantar fascia under the foot. This fascia runs from the heel to the toes....
Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and...
When I attended my first EDS The Ehlers-Danlos Society conference in Las Vegas in 2017, around 50% of my clients had EDS and hypermobility with pain. I was kindly invited to speak by Lara Bloom CEO of The EDS Society. I had just released the...
What does the word Exercise mean for you? Does it fill you with dread and anxiety? It is time that narrative changed for the community? Defying the odds: I’m never one to tell someone they should stop doing something they love. I believe...
I know it can be a common thing in hypermobility and it is very painful. It can make us anxious about exercising as we fear a subluxation. Some people have even been told by some medical professionals that a rib subluxation is physically impossible...