The Zebrastrong Blog

Estimated reading time: 9 minutesParents raising a child living with Ehlers-Danlos Syndrome have the same goals as any parent: to see their child grow and thrive at home, at school, and in the community, connecting with others and pursuing their passions. Learning how to achieve these goals in the context of managing chronic symptoms that are experienced with EDS takes extra support and adaptation, and there are resources available to guide parents through the process.

Estimated reading time: 5 minutesI became interested in learning more about the mechanics of back pain after my initial Pilates training. So many people who attend Pilates classes start because they have pain, often back pain. I trained to become a back care specialist in 2009 and started running weekly back pain classes. 

Estimated reading time: 8 minutesThe current advice to to manage low back pain is to stay active (1), but what if walking – one of the most easy and accessible ways to stay active – results in pain?

Estimated reading time: 6 minutesI’ve shared in a previous blog how my adolescence was plagued by TMJ pain and locking overnight. I struggled to chew food, and it would constantly click. The jaw joint, like any other in the body, relies on stability and proper muscular support. I had some imbalances at that time that caused daily pain.

Estimated reading time: 5 minutesAs a teenager, I had terrible issues with my jaw – in particular, the temporomandibular joint (TMJ). It would lock overnight and would be extremely painful to open it. I probably didn’t have the right movement patterns and balance of my facial and jaw muscles.

Estimated reading time: 5 minutesI’ve lost count of the number of clients who describe sacroiliac joint or SI joint pain with their hypermobility. This pain can be felt in the lower back, as deep groin pain, in the glutes, and into the leg.

Estimated reading time: 6 minutesIn my 16 years of clinical practice, I have worked with clients of all ages with EDS and HSD. I’ve seen children, teenagers, and adults of all ages.

Estimated reading time: 7 minutesFibromyalgia and symptomatic hypermobility are often debilitating conditions and have overlapping symptoms. Patients presenting with muscular and joint pain and fatigue can frequently be diagnosed with fibromyalgia when, in fact, an Ehlers-Danlos Syndrome diagnosis might have been missed.

Estimated reading time: 4 minutesEvery year we are bombarded with people trying to sell us perfection. We’re encouraged to lose weight, get a six-pack, or feel our best ever in 2025. There is a pressure to set what could be unrealistic resolutions or goals, that ultimately leave us feeling like we’ve let ourselves down.