The Zebrastrong Blog

Estimated reading time: 4 minutesBoom and Bust: I imagine we’ve all been there at some point. But what do we do about it? This topic has been coming up a lot recently in conversations with hypermobile and EDS clients. How do we progress without the boom and bust? I wanted to give my thoughts on this important subject because without understanding it, how do we get stronger without getting knocked back every time we think we are getting somewhere?

Estimated reading time: 2 minutesWe Are Visible – a film by Karina Sturm. This film is going to close the gap on EDS education. When Karina got in touch recently to ask me to review her exciting new project, I was delighted. Karina has spent the last 14 months working on her first film – We Are Visible. You may have heard of it as it has already won some awards. I felt privileged to have an early preview. Here are my thoughts.

Estimated reading time: 5 minutesAnd other surrounding tissues! If you’ve ever had a joint sublux or dislocate, you will know how painful this can be.

Estimated reading time: 2 minutesWhat does zebrastrong mean to you? I remember a time when the thought of moving and living pain-free was just a thought. I was in pain, fearful of movement and frustrated at trying many options without success.

Estimated reading time: 6 minutesApologies that I have been absent from my blog for a few months. I have been working on a project very special to my heart. For the past months, I have been busy writing my second book – Hypermobility Without Tears, which is a step-by-step guide to help people with hypermobility and Ehlers-Danlos Syndrome move with less pain.

Estimated reading time: 2 minutesSeptember was Pain Awareness Month. It’s taken me a while to put pen to paper because this is such a huge subject. I wasn’t sure where to start.

Estimated reading time: 3 minutesFor someone dealing with chronic pain, exercise feels like that last thing that should be on the agenda. With a body that’s easily exhausted, aches, and often acts frustratingly beyond your control, it might seem crazy to choose to physically exert yourself more.  But I’ve found exercise to be a fundamental part of managing chronic pain conditions and for those living with forms of hypermobility.

Estimated reading time: 2 minutesFor EDS Awareness Month, I’ve been thinking a lot about empowerment, inspired by the strength of communities who society often disregards as weak. Whether it’s hearing the stories of creative and resilient people, the positivity of #fragilebutunbreakable social media campaign, or watching the phenomenal achievements of the EDS community.  I am awed by this strength in the face of adversity.

Estimated reading time: 3 minutesAs a sufferer of Ehlers-Danlos Syndrome or hypermobility, you may not be familiar with the terms fascia and proprioception. I wasn’t until well into my health journey. But, whilst sounding complicated, these words actually describe things that are very simple, amazing, fascinating, as well as intrinsic to these conditions.