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Associated Conditions
April 14th, 2025
EDS, Hypermobility, and Breathing
Estimated reading time: 7 minutesIf you have EDS or HSD, have you ever experienced that feeling of not being able to take a deep breath or feeling breathless and anxious about breathing?
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March 19th, 2025
Salt and Electrolytes for POTS
Estimated reading time: 8 minutesI was officially diagnosed with Postural Orthostatic Tachycardia (POTS) after the pandemic. Like many people, my moderate POTS symptoms that I had managed all my life became much worse post pandemic.
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February 14th, 2025
Why does my lower back hurt when walking?
Estimated reading time: 8 minutesThe current advice to to manage low back pain is to stay active (1), but what if walking – one of the most easy and accessible ways to stay active – results in pain?
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February 10th, 2025
Understanding temporomandibular disorders in Ehlers-Danlos syndrome (EDS)
Estimated reading time: 6 minutesI’ve shared in a previous blog how my adolescence was plagued by TMJ pain and locking overnight. I struggled to chew food, and it would constantly click. The jaw joint, like any other in the body, relies on stability and proper muscular support. I had some imbalances at that time that caused daily pain.
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February 3rd, 2025
Ehlers Danlos Syndrome, the tongue and Orofacial Myofunctional Therapy
Estimated reading time: 5 minutesAs a teenager, I had terrible issues with my jaw – in particular, the temporomandibular joint (TMJ). It would lock overnight and would be extremely painful to open it. I probably didn’t have the right movement patterns and balance of my facial and jaw muscles.
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January 13th, 2025
The link between fibromyalgia and hypermobility
Estimated reading time: 7 minutesFibromyalgia and symptomatic hypermobility are often debilitating conditions and have overlapping symptoms. Patients presenting with muscular and joint pain and fatigue can frequently be diagnosed with fibromyalgia when, in fact, an Ehlers-Danlos Syndrome diagnosis might have been missed.
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November 19th, 2024
Understanding Spinal Instability
Estimated reading time: 8 minutesI am often astounded by the choice of words and language that is used with patients about their spines. As therapists and clinicians, we need to be mindful of how we explain things to patients and clients so that we do not create fear, misunderstandings, or a sense of vulnerability.
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November 5th, 2024
The link between Ehlers-Danlos Syndrome (EDS) and Osteoporosis
Estimated reading time: 7 minutesI met my first osteoporosis client back when I first started teaching. As part of my initial Pilates training, I’d taken additional courses in how to work with osteoporosis so I was able to safely modify exercises for her during a Pilates mat class. Now it is something I regularly receive questions about.
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September 25th, 2024
Understanding dysautonomia
Estimated reading time: 8 minutesMy first real client introduction to dysautonomia and in this case Postural Orthostatic Tachycardia Syndrome (POTS) was back in 2013 when I had a lady join one of my group classes. She told me she would not be able to do any exercises that involved raising her arms above her head as she would faint. She could mitigate this if she was holding a weight in her hands – that would stop the fainting. This makes sense – the autonomic nervous system (ANS) affects blood pressure regulation and blood flow.
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September 18th, 2024
Understanding Ehlers-Danlos Syndrome and Its Connection to Scoliosis
Estimated reading time: 6 minutesWhen I started teaching Pilates mat classes back in 2008, one of the very first clients who joined my classes had scoliosis. I learnt from day one how to work with scoliosis and what was best for this condition (she is still my client today 16 years later, so hopefully I did OK!).
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September 11th, 2024
Nociplastic pain, hypermobility, and a sensitized nervous system
Estimated reading time: 6 minutesI’ve asked Dr. Leslie Russek, scientific advisor to The Zebra Club, to collaborate to learn about nociplastic pain and how to regulate a sensitized nervous system.
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August 26th, 2024
EDS and Mast Cell Activation Syndrome (MCAS)
Estimated reading time: 7 minutesI received my diagnosis of hypermobile EDS because of MCAS, which is probably not the usual route. Back in 2016, I started having a number of symptoms that no doctor could explain. One of the main symptoms was repeated bladder infections and bladder irritability. This went on for 18 months, along with other symptoms like headaches, flushing, rashes, and increased sensitivity to foods and smells I had previously tolerated. I was becoming sicker and sicker with repeated infections and inflammation.
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The Zebra Club APP
Hypermobility safe, affordable and effective movement, education and community in the comfort of your own home.
The Zebra Club app is a programme based on the Integral Movement Method. In this programme I will carefully guide you through safe exercises to manage your pain.
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