EDS

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January 20th, 2025

Aging with EDS

Estimated reading time: 6 minutesIn my 16 years of clinical practice, I have worked with clients of all ages with EDS and HSD. I’ve seen children, teenagers, and adults of all ages.

January 13th, 2025

The link between fibromyalgia and hypermobility

Estimated reading time: 7 minutesFibromyalgia and symptomatic hypermobility are often debilitating conditions and have overlapping symptoms. Patients presenting with muscular and joint pain and fatigue can frequently be diagnosed with fibromyalgia when, in fact, an Ehlers-Danlos Syndrome diagnosis might have been missed.

January 2nd, 2025

Gentle January: Why it’s OK to go slow

Estimated reading time: 4 minutesEvery year we are bombarded with people trying to sell us perfection. We’re encouraged to lose weight, get a six-pack, or feel our best ever in 2025. There is a pressure to set what could be unrealistic resolutions or goals, that ultimately leave us feeling like we’ve let ourselves down.

December 23rd, 2024

Understanding joint hypermobility and the Beighton score

Estimated reading time: 6 minutesSadly, I still encounter clients in my clinic who consultants and physicians have dismissed because they do not score high on the Beighton score. If this continues to happen and diagnosis is delayed, patient outcomes will not improve as fast as they could.

December 10th, 2024

The Connection Between Hypermobility, Joint Pain, and Instability

Estimated reading time: 6 minutesJoint pain and instability, including subluxations and dislocations for many people, is probably one of the most challenging aspects of managing symptomatic hypermobility and EDS.

November 19th, 2024

Understanding Spinal Instability

Estimated reading time: 8 minutesI am often astounded by the choice of words and language that is used with patients about their spines. As therapists and clinicians, we need to be mindful of how we explain things to patients and clients so that we do not create fear, misunderstandings, or a sense of vulnerability.

November 13th, 2024

The connection between hypermobility and “bad posture”

Estimated reading time: 10 minutesI’ve told the story many times of my first visit with a physiotherapist after the birth of my second son. I was experiencing terrible shoulder pain and loss of power down my left arm. He took one look at me and told me I was hanging off my joints and had a terrible posture.

November 5th, 2024

The link between Ehlers-Danlos Syndrome (EDS) and Osteoporosis

Estimated reading time: 7 minutesI met my first osteoporosis client back when I first started teaching. As part of my initial Pilates training, I’d taken additional courses in how to work with osteoporosis so I was able to safely modify exercises for her during a Pilates mat class. Now it is something I regularly receive questions about.

October 22nd, 2024

Understanding the impact of EDS on pregnancy

Estimated reading time: 8 minutesIt is important to remember that whilst pregnancy can be challenging for some people with hEDS, many people have healthy pregnancies. If you have an hEDS diagnosis, it can help ensure you receive extra attention and individualized care.

October 14th, 2024

Understanding hypermobility in children and young adults

Estimated reading time: 9 minutesIt is important to remember that most children are hypermobile – this does not mean they have a syndrome or connective tissue disorder. Hypermobility can be asymptomatic, and does not mean joints are unstable. Children under the age of six will not be assessed for any hypermobility syndrome as it is a normal part of life and hypermobility can decrease as they age. If however, after this age problems persist, it is worth investigating further.

October 2nd, 2024

Understanding ankle hypermobility

Estimated reading time: 8 minutesLateral ankle sprains are one of the most common injuries that occur with activities and recreation in the general population (not considering hypermobility). Up to 70% of people that sprain their ankle have recurring ankle sprains and chronic symptoms (1). I find this is a common issue in the hypermobile population and something I often address with my clients.

September 25th, 2024

Understanding dysautonomia

Estimated reading time: 8 minutesMy first real client introduction to dysautonomia and in this case Postural Orthostatic Tachycardia Syndrome (POTS) was back in 2013 when I had a lady join one of my group classes. She told me she would not be able to do any exercises that involved raising her arms above her head as she would faint. She could mitigate this if she was holding a weight in her hands – that would stop the fainting. This makes sense – the autonomic nervous system (ANS) affects blood pressure regulation and blood flow.

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