EDS

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March 3rd, 2025

Essential resources for parents of children with EDS

Estimated reading time: 9 minutesParents raising a child living with Ehlers-Danlos Syndrome have the same goals as any parent: to see their child grow and thrive at home, at school, and in the community, connecting with others and pursuing their passions. Learning how to achieve these goals in the context of managing chronic symptoms that are experienced with EDS takes extra support and adaptation, and there are resources available to guide parents through the process.

February 24th, 2025

Best exercises and stretches for lower back pain

Estimated reading time: 5 minutesI became interested in learning more about the mechanics of back pain after my initial Pilates training. So many people who attend Pilates classes start because they have pain, often back pain. I trained to become a back care specialist in 2009 and started running weekly back pain classes.

February 10th, 2025

Understanding temporomandibular disorders in Ehlers-Danlos syndrome (EDS)

Estimated reading time: 6 minutesI’ve shared in a previous blog how my adolescence was plagued by TMJ pain and locking overnight. I struggled to chew food, and it would constantly click. The jaw joint, like any other in the body, relies on stability and proper muscular support. I had some imbalances at that time that caused daily pain.

February 3rd, 2025

Ehlers Danlos Syndrome, the tongue and Orofacial Myofunctional Therapy

Estimated reading time: 5 minutesAs a teenager, I had terrible issues with my jaw – in particular, the temporomandibular joint (TMJ). It would lock overnight and would be extremely painful to open it. I probably didn’t have the right movement patterns and balance of my facial and jaw muscles.

January 27th, 2025

The SI Joint and Hypermobility

Estimated reading time: 5 minutesI’ve lost count of the number of clients who describe sacroiliac joint or SI joint pain with their hypermobility. This pain can be felt in the lower back, as deep groin pain, in the glutes, and into the leg.

January 20th, 2025

The Truth About EDS and Aging: What 16 Years of Clinical Movement Therapy Has Taught Me

Estimated reading time: 7 minutesIn my 16 years of clinical practice, I have worked with clients of all ages with EDS and HSD. I’ve seen children, teenagers, and adults of all ages.

January 13th, 2025

The link between fibromyalgia and hypermobility

Estimated reading time: 7 minutesFibromyalgia and symptomatic hypermobility are often debilitating conditions and have overlapping symptoms. Patients presenting with muscular and joint pain and fatigue can frequently be diagnosed with fibromyalgia when, in fact, an Ehlers-Danlos Syndrome diagnosis might have been missed.

January 2nd, 2025

Gentle January: Why it’s OK to go slow

Estimated reading time: 4 minutesEvery year we are bombarded with people trying to sell us perfection. We’re encouraged to lose weight, get a six-pack, or feel our best ever in 2025. There is a pressure to set what could be unrealistic resolutions or goals, that ultimately leave us feeling like we’ve let ourselves down.

December 23rd, 2024

Understanding joint hypermobility and the Beighton score

Estimated reading time: 6 minutesSadly, I still encounter clients in my clinic who consultants and physicians have dismissed because they do not score high on the Beighton score. If this continues to happen and diagnosis is delayed, patient outcomes will not improve as fast as they could.

November 19th, 2024

Understanding Spinal Instability

Estimated reading time: 8 minutesI am often astounded by the choice of words and language that is used with patients about their spines. As therapists and clinicians, we need to be mindful of how we explain things to patients and clients so that we do not create fear, misunderstandings, or a sense of vulnerability.

November 13th, 2024

The connection between hypermobility and “bad posture”

Estimated reading time: 10 minutesI’ve told the story many times of my first visit with a physiotherapist after the birth of my second son. I was experiencing terrible shoulder pain and loss of power down my left arm. He took one look at me and told me I was hanging off my joints and had a terrible posture.

November 5th, 2024

The link between Ehlers-Danlos Syndrome (EDS) and Osteoporosis

Estimated reading time: 7 minutesI met my first osteoporosis client back when I first started teaching. As part of my initial Pilates training, I’d taken additional courses in how to work with osteoporosis so I was able to safely modify exercises for her during a Pilates mat class. Now it is something I regularly receive questions about.

The Zebra Club APP

Hypermobility safe, affordable and effective movement, education and community in the comfort of your own home.

The Zebra Club app is a programme based on the Integral Movement Method. In this programme I will carefully guide you through safe exercises to manage your pain.

Learn more