What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night...
I’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award. I was presented with the Community Champion Award for...
Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day. But I held...
I’m not sure if it’s more prevalent in the hypermobile community but I see a fair amount of Plantar Fasciitis in the clinic. This is a painful inflammatory condition of the plantar fascia under the foot. This fascia runs from the heel to the toes....
Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and...
Pillow struggle is a thing. Is there the perfect pillow to hypermobile necks that will help prevent neck and shoulder pain? This is the number one non-movement related question I get emails and questions about. Personally, I’ve tried so many different pillows. I have...
Give yourself (or your pet) a big hug. You’re doing great. I have a question. How do you look after yourself when things get challenging? I ask because self-care was not something I used to do, certainly not regularly. One thing that lockdown has given me...