June 17th, 2024

Understanding hypermobility in the neck

Neck pain is a common issue faced by those of us with hypermobility. Proprioception and muscle endurance of the neck are essential for functional stability (1). This is often lacking in hypermobility due to joint instability, muscle strains, poor posture, and ligament laxity.

June 3rd, 2024

Managing Ehlers-Danlos Syndrome through Exercise

Have you been told to exercise to help manage your EDS or HSD? Perhaps you have been given no instruction on how to exercise with this condition. Or perhaps you’ve been told to just do pilates or go swimming. Or maybe you’ve been sent to a physical therapist who doesn’t understand hypermobility and makes things worse?

April 24th, 2024

Understanding flare-ups in EDS

Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for the sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

April 17th, 2024

Understanding Hypermobility Foot Mechanics and Pain Management

I always start at the feet.

The foot needs to be stable and mobile at the same time for good foot mechanics. It is super important to understand the relationship between the foot and the rest of the body. The foot will impact the knee, hip, lower back, and upwards from there. Even asymptomatic hypermobile feet and ankles can contribute to pain all the way up the body (1).

April 4th, 2023

Thanks for sticking with me when things got tough

“Thanks for sticking with me when things go tough”. I received this at the end of an email from a lovely EDS client. I work with some very complex cases. There are always going to be ups and downs. A condition like EDS or HSD is never linear. I am prepared for the unexpected.

December 15th, 2022

What’s tissue tolerance? Can it help me avoid injury with hypermobility?

Injury prevention – how do we work towards that with hypermobility?

August 22nd, 2022

What really happens when we lock our joints?

What happens when we lock our Hypermobile Joints? As someone who always stood with locked knees and picked things up with hyperextended elbows, changing this pattern was really important for my joint health.

July 13th, 2022

Chronic Illness Exercise – Do you mourn your previous regime?

What’s your relationship with exercise? Has it changed over the years? Did a chronic illness diagnosis change your approach?

June 8th, 2022

Has the exercise message been movement at any cost?

Have you ever felt the message was ‘movement at any cost? I was speaking with a client recently who felt this was very much the message she had always perceived. We need to exercise, you must do it every day no matter what, even if it takes an hour or more. Regardless of how you feel or what the body is telling you. And if you don’t do them, you are failing or lazy. This is not the way forward. It is not healthy physically or mentally.

April 18th, 2022

What people don’t see when you live with a chronic illness

What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.

February 17th, 2022

EDS UK Community Champion Award Winner

I’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award.

January 25th, 2022

Living with Ehlers-Danlos – A Life in Two Halves

Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day.