The Zebrastrong Blog

Estimated reading time: 2 minutesLiving with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.

Estimated reading time: 2 minutesWhat’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved?

Estimated reading time: < 1 minuteI am delighted to have teamed up with the most famous physical therapists on the internet (in their opinion of course) – Bob and Brad. If you know them, the theme tune to their famous YouTube channel is probably running through your head right now.

Estimated reading time: < 1 minuteI’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award.

Estimated reading time: 2 minutesLike many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day.

Estimated reading time: 2 minutesCan we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

Estimated reading time: 2 minutesWhen I attended my first EDS The Ehlers-Danlos Society conference in Las Vegas in 2017, around 50% of my clients had EDS and hypermobility with pain. I was kindly invited to speak by Lara Bloom CEO of The EDS Society.  I had just released the first online hypermobility course, Strengthen Your Hypermobile Core.

Estimated reading time: < 1 minuteSeason 1 of this dedicated hypermobility podcast has ended, but we will be back in the Autumn with more amazing and inspiring guests. This was my first attempt at a Podcast, and I have absolutely loved every minute of it. I have had the privilege to interview zebras and experts at the top of their game.

Estimated reading time: 2 minutesSoft is the new strong. This seems the total wrong thing – when we feel loose and disjointed, surely we should be bracing to hold it all together. I discovered that led to more pain and fatigue. So I went soft.