The Zebrastrong Blog

Managing your pain starts with learning what works for you, your body and your lifestyle. That’s why my blog is about more than techniques for managing pain. Here you’ll also find strategies for coping with the emotional and social aspects too.

The Boom and Bust of EDS Exercise

Boom and Bust: I imagine we’ve all been there at some point. But what do we do about it? This topic has been coming up a lot recently in conversations with hypermobile and EDS clients. How do we progress without the boom and bust? I wanted to give my thoughts on this important subject because without understanding it, how do we get stronger without getting knocked back every time we think we are getting somewhere?

This film is going to close the gap on EDS education

We Are Visible – a film by Karina Sturm. This film is going to close the gap on EDS education. When Karina got in touch recently to ask me to review her exciting new project, I was delighted. Karina has spent the last 14 months working on her first film – We Are Visible. You may have heard of it as it has already won some awards. I felt privileged to have an early preview. Here are my thoughts.

Subluxation is a Real Pain in the Joint

And other surrounding tissues! If you’ve ever had a joint sublux or dislocate, you will know how painful this can be. In this article I’m going to share my thoughts on this complex issue that so often impacts the lives of people living with hypermobility or a connective tissue disorder like Ehlers-Danlos Syndrome. I am also sharing my practical approach on how to prevent subluxation. This is based on my personal experience and feedback from my hypermobile clients.

What Does Zebrastrong Mean To You?

What does zebrastrong mean to you? I remember a time when the thought of moving and living pain-free was just a thought. I was in pain, fearful of movement and frustrated at trying many options without success.

Moving Pain-Free with Hypermobility and Ehlers-Danlos Syndrome

Apologies that I have been absent from my blog for a few months. I have been working on a project very special to my heart. For the past months, I have been busy writing my second book – Hypermobility Without Tears, which is a step-by-step guide to help people with hypermobility and Ehlers-Danlos Syndrome move pain-free.

How do you explain your pain to others?

September was Pain Awareness Month. It’s taken me a while to put pen to paper because this is such a huge subject. I wasn’t sure where to start.

EDS and exercise: not the opposites you think

For someone dealing with chronic pain, exercise feels like that last thing that should be on the agenda. With a body that’s easily exhausted, aches, and often acts frustratingly beyond your control, it might seem crazy to choose to physically exert yourself more.  But I’ve found exercise to be a fundamental part of managing chronic pain conditions and for those living with forms of hypermobility.

Empowerment: finding your strength

For EDS Awareness Month, I’ve been thinking a lot about empowerment, inspired by the strength of communities who society often disregards as weak. Whether it’s hearing the stories of creative and resilient people, the positivity of #fragilebutunbreakable social media campaign, or watching the phenomenal achievements of the EDS community.  I am awed by this strength in the face of adversity.

Fascia and Proprioception: what are they and what do they mean for those with EDS?

As a sufferer of Ehlers-Danlos Syndrome or hypermobility, you may not be familiar with the terms fascia and proprioception. I wasn’t until well into my health journey. But, whilst sounding complicated, these words actually describe things that are very simple, amazing, fascinating, as well as intrinsic to these conditions.

For many, Mother’s Day is a sharp reminder of what we miss most

Mother’s Day. Last minute cards and chocolates bought, shops repeatedly and urgently stage-whispering ‘Don’t forget!’. Despite all the commercialism, I’m still a supporter of anything which makes us pause and appreciate the people and actions we so often take for granted.