What does zebrastrong mean to you? I remember a time when the thought of moving and living pain-free was just a thought. I was in pain, fearful of movement and frustrated at trying many options without success. Having worked for over ten years with Hypermobile and...
Apologies that I have been absent from my blog for a few months. I have been working on a project very special to my heart. For the past months, I have been busy writing my second book - Hypermobility Without Tears, which is a step-by-step...
September was Pain Awareness Month. It’s taken me a while to put pen to paper because this is such a huge subject. I wasn’t sure where to start. Here’s my personal experience of pain. Pain is very real, but it’s also subjective, it changes, it can...
For someone dealing with chronic pain, exercise feels like that last thing that should be on the agenda. With a body that’s easily exhausted, aches, and often acts frustratingly beyond your control, it might seem crazy to choose to physically exert yourself more. But I’ve found...
For EDS Awareness Month, I’ve been thinking a lot about empowerment, inspired by the strength of communities who society often disregards as weak. Whether it’s hearing the stories of creative and resilient people, the positivity of #fragilebutunbreakable social media campaign, or watching the phenomenal achievements...
As a sufferer of Ehlers-Danlos Syndrome or hypermobility, you may not be familiar with the terms fascia and proprioception. I wasn’t until well into my health journey. But, whilst sounding complicated, these words actually describe things that are very simple, amazing, fascinating, as well as...
Mother’s Day. Last minute cards and chocolates bought, shops repeatedly and urgently stage-whispering ‘Don’t forget!’. Despite all the commercialism, I’m still a supporter of anything which makes us pause and appreciate the people and actions we so often take for granted. But we mustn’t forget that...
We spend a lot of time thinking about our bodies. For those who are lucky to live free from pain or conditions such as Ehlers-Danlos Syndrome (EDS), this often focuses our bodies look or the bits we’d like to tone or change. For those of...
One piece of advice every person with a chronic illness must be tired of hearing is that they ‘just need a healthier diet’. We all know that eating more fruit and veg is not going to suddenly cure hypermobility and EDS, however much kale we...
Whilst much of the discussion around hypermobility and EDS focuses on movement, a common source of anxiety, frustration and stress for those living with such conditions comes from the other half of our lives - sleep. Many people living with EDS have huge difficulties when it...