For someone dealing with chronic pain, exercise feels like that last thing that should be on the agenda. With a body that’s easily exhausted, aches, and often acts frustratingly beyond your control, it might seem crazy to choose to physically exert yourself more. But I’ve found...
For EDS Awareness Month, I’ve been thinking a lot about empowerment, inspired by the strength of communities who society often disregards as weak. Whether it’s hearing the stories of creative and resilient people, the positivity of #fragilebutunbreakable social media campaign, or watching the phenomenal achievements...
As a sufferer of Ehlers-Danlos Syndrome or hypermobility, you may not be familiar with the terms fascia and proprioception. I wasn’t until well into my health journey. But, whilst sounding complicated, these words actually describe things that are very simple, amazing, fascinating, as well as...
Mother’s Day. Last minute cards and chocolates bought, shops repeatedly and urgently stage-whispering ‘Don’t forget!’. Despite all the commercialism, I’m still a supporter of anything which makes us pause and appreciate the people and actions we so often take for granted. But we mustn’t forget that...
We spend a lot of time thinking about our bodies. For those who are lucky to live free from pain or conditions such as Ehlers-Danlos Syndrome (EDS), this often focuses our bodies look or the bits we’d like to tone or change. For those of...
One piece of advice every person with a chronic illness must be tired of hearing is that they ‘just need a healthier diet’. We all know that eating more fruit and veg is not going to suddenly cure hypermobility and EDS, however much kale we...
Whilst much of the discussion around hypermobility and EDS focuses on movement, a common source of anxiety, frustration and stress for those living with such conditions comes from the other half of our lives - sleep. Many people living with EDS have huge difficulties when it...
The way we tend to think about Christmas food is pretty static: we stick to the same traditions; we use it as an excuse to over-indulge, and we push any thoughts about healthy eating (or nutritional content) to the very backs of our minds. We resign ourselves...
It’s time we took the stress out of Christmas. Most of us remember the excitement of Christmas as a child – the weeks of build-up, the anticipation of treats and the opening of advent calendar doors, not the mention the exhilaration of waking up on Christmas morning. But as we get...
There are a range of common symptoms suffered by those with hypermobility or Ehlers-Danlos Syndrome. One of these is a predisposition to headaches and migraines. These can be debilitating. Those who suffer know they cause a lot more than just mild discomfort or annoyance. People living...