May 10th, 2024

Sleeping with hypermobility: A comprehensive guide

Estimated reading time: 7 minutesWhilst much of the discussion around hypermobility and EDS focuses on movement, a common source of anxiety, frustration and stress for those living with such conditions comes from the other half of our lives – sleep.

May 1st, 2024

Understanding shoulder hypermobility

Estimated reading time: 7 minutesAlmost every client I’ve worked with has problems with their shoulders. 4 in 5 people with symptomatic hypermobility have shoulder problems (1). Even in the general (not necessarily hypermobile) population, it is the most commonly dislocated joint in the body (2).

April 24th, 2024

Understanding flare-ups in EDS

Estimated reading time: 9 minutesCan we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for the sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

April 17th, 2024

Understanding Hypermobility Foot Mechanics and Pain Management

Estimated reading time: 8 minutesI always start at the feet.

The foot needs to be stable and mobile at the same time for good foot mechanics. It is super important to understand the relationship between the foot and the rest of the body. The foot will impact the knee, hip, lower back, and upwards from there. Even asymptomatic hypermobile feet and ankles can contribute to pain all the way up the body (1).

April 12th, 2024

What is coat hanger pain?

Estimated reading time: 5 minutesCoat hanger pain is a pain in the neck and upper back, specifically the suboccipital and paracervical regions. It has been described as a “charley horse” kind of sensation in the back of the neck and shoulders. This pattern mimics the shape of a coat hanger with the hook in the neck and the body spreading out across the upper trapezius muscles and shoulders.

April 4th, 2024

What is Self-Compassion and why is it so important?

Estimated reading time: 6 minutesSelf-compassion has been studied in various contexts in a wide range of populations and is linked with positive mental health consistently.

March 28th, 2024

Headaches in Ehlers-Danlos Syndromes

Estimated reading time: 6 minutesDiscover the link between Ehlers-Danlos Syndrome and headaches. Learn about causes, such as upper cervical instability, and find effective treatment strategies.

March 22nd, 2024

The Link Between Hypermobility, Autism and Anxiety


Estimated reading time: 5 minutesDiscover the complex connection between hypermobility, autism, and anxiety. Delve into how autism presents differently in women.

March 13th, 2024

What is Post Exertional Malaise (PEM)?

Estimated reading time: 3 minutesPost Exertional Malaise seems to be a hot topic right now. PEM is a cardinal symptom of ME/CFS. While fatigue is very common in my hypermobile patients, the fatigue experienced with ME/CFS can be different. I know, I have ME/CFS myself as do many of The Zebra Club members. I asked Emily Rich to explain more about PEM and how it may change the approach to exercise.

March 7th, 2024

POTS and Exercise with Emily Rich, OT

Estimated reading time: 3 minutesOccupational therapist and researcher Emily Rich shares her expertise and advice when it comes to exercising with POTS.

February 7th, 2024

Fascia and hEDS

Estimated reading time: 3 minutesFascia is connected to the way we live and move in the world. It tenses up when we feel threatened, loosens when we’re happy and at ease, and it’s responsible for sensations like prickling at the back of your neck. It also has an elastic quality, contracting and expanding, and stores and releases the kinetic energy from our body’s movement. 

October 16th, 2023

Managing Nociceptive and Neuropathic Pain with Dr. Leslie Russek

Estimated reading time: 2 minutesNociceptive and neuropathic pain are caused by mechanical factors, inflammation, or disease affecting the tissues