Headaches in Ehlers-Danlos Syndromes

Estimated reading time: 5 minutes Discover the link between Ehlers-Danlos Syndrome and headaches. Learn about causes, such as upper cervical instability, and find effective treatment strategies.

The Link Between Hypermobility, Autism and Anxiety

Estimated reading time: 4 minutes Discover the complex connection between hypermobility, autism, and anxiety. Delve into how autism presents differently in women.

What is Post Exertional Malaise (PEM)?

Estimated reading time: 3 minutes Post Exertional Malaise seems to be a hot topic right now. PEM is a cardinal symptom of ME/CFS. While fatigue is very common in my hypermobile patients, the fatigue experienced with ME/CFS can be different. I know, I have ME/CFS myself as do many of The Zebra Club members. I asked Emily Rich to explain more about PEM and how it may change the approach to exercise.

POTS and Exercise with Emily Rich, OT

Estimated reading time: 3 minutes Occupational therapist and researcher Emily Rich shares her expertise and advice when it comes to exercising with POTS.

Fascia and hEDS

Estimated reading time: 3 minutes Fascia is connected to the way we live and move in the world. It tenses up when we feel threatened, loosens when we’re happy and at ease, and it’s responsible for sensations like prickling at the back of your neck. It also has an elastic quality, contracting and expanding, and stores and releases the kinetic energy from our body’s movement. 

Hypermobility & EDS Fatigue: It’s not the same as being tired.

Estimated reading time: 3 minutes First of all, If you have EDS or HSD and suffer from fatigue, you are not alone. When we began to analyse the responses in our study on the IMM using my Strengthen Your Hypermobile Core video series with Dr. Russek and Jane Simmonds, we found that fatigue was one of the biggest barriers to movement (along with pain).

Navigating Menopause with Hypermobility and Ehlers-Danlos Syndrome

Estimated reading time: 2 minutes When I hit the menopause or rather it hit me, my life changed dramatically. I had been managing my hypermobility and Ehlers-Danlos symptoms pretty well until then.

Nociplastic Pain and the Sensitive Nervous System

Estimated reading time: 3 minutes Dr. Leslie Russek, scientific advisor to The Zebra Club, joins us to discuss nociplastic pain and how we can regulate a sensitized nervous system.

Managing Nociceptive and Neuropathic Pain with Dr. Leslie Russek

Estimated reading time: 2 minutes Nociceptive and neuropathic pain are caused by mechanical factors, inflammation, or disease affecting the tissues

The 3 Types of Hypermobility Pain by Dr. Leslie Russek

Estimated reading time: 2 minutes Pain is a signal from your brain that it perceives danger. There are 3 types of pain: nociceptive, neuropathic, and neoplastic.