What people don’t see when you live with a chronic illness

What’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved? I have friends who don’t have EDS or chronic illness. They fill their weekends with activities from morning till night – doing multiple things in one day. And they don’t seem that tired.

EDS UK Community Champion Award Winner

I’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award.

Living with Ehlers-Danlos – a life in two halves

Like many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day. But I held a full-time job in Human Resources, studied at university after a full day at work for my Master’s degree and arrived home at 10pm at night. I’d get up the next day and do it all again. Looking back, I can only imagine doing this lifestyle.

Hypermobility and Plantar Fasciitis

I’m not sure if it’s more prevalent in the hypermobile community but I see a fair amount of Plantar Fasciitis in the clinic. This is a painful inflammatory condition of the plantar fascia under the foot. This fascia runs from the heel to the toes. It is typically worse in the mornings when the plantar fascia has stiffened overnight, and movement gradually improves it during the day for some people.

Hypermobility Flare-Up Management

Can we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

Feeling Accepted With A Chronic Illness

When I attended my first EDS The Ehlers-Danlos Society conference in Las Vegas in 2017, around 50% of my clients had EDS and hypermobility with pain. I was kindly invited to speak by Lara Bloom CEO of The EDS Society.  I had just released the first online hypermobility course, Strengthen Your Hypermobile Core.

The truth about exercising with hypermobility and Ehlers Danlos

What does the word Exercise mean for you? Does it fill you with dread and anxiety? It is time that narrative changed for the community?

Hypermobility Rib Subluxation – Ideas for Prevention

I know it can be a common thing in hypermobility and it is very painful. It can make us anxious about exercising as we fear a subluxation. Some people have even been told by some medical professionals that a rib subluxation is physically impossible – but I think if you have hypermobility you may disagree with this.

Finding your range season 1 sum up – hypermobility podcast

Season 1 of this dedicated hypermobility podcast has ended, but we will be back in the Autumn with more amazing and inspiring guests. This was my first attempt at a Podcast, and I have absolutely loved every minute of it. I have had the privilege to interview zebras and experts at the top of their game.

If you have hypermobility, pillow struggle is a real thing

Pillow struggle is a thing. Is there the perfect pillow to hypermobile necks that will help prevent neck and shoulder pain? This is the number one non-movement related question I get emails and questions about.