May 19th, 2022

The Lonely Chronic Illness Life

Estimated reading time: 2 minutesLiving with a chronic illness can sometimes be lonely. It can be difficult for friends and family to really understand how we are feeling and why we don’t ‘get better’. It drives me crazy when people say ‘you just need a good night sleep’ – like it’s a miracle cure.

April 18th, 2022

What people don’t see when you live with a chronic illness

Estimated reading time: 2 minutesWhat’s it like when you go out out – if you do go out out? Is there a lot of preparation and organisation involved?

March 21st, 2022

Raising EDS Awareness with Bob and Brad

Estimated reading time: < 1 minuteI am delighted to have teamed up with the most famous physical therapists on the internet (in their opinion of course) – Bob and Brad. If you know them, the theme tune to their famous YouTube channel is probably running through your head right now.

February 17th, 2022

EDS UK Community Champion Award Winner

Estimated reading time: < 1 minuteI’m super proud and delighted to receive the Community Champion Award fromy Ehlers-Danlos Support UK. Thank you to Anne Lavery and Nikki Casey Eds for a lovely day when I was presented with my award.

January 25th, 2022

Living with Ehlers-Danlos – A Life in Two Halves

Estimated reading time: 2 minutesLike many of us, I used to see my life in two halves. Pre motherhood, I lived with symptoms on a daily basis like muscular pain, daily migraines, digestive issues (diagnosed as IBS aged 12). I thought everyone had issues every day.

November 18th, 2021

Hypermobility Flare-Up Management

Estimated reading time: 2 minutesCan we ever really be prepared for a flare-up? And when they arrive, how do we manage them? They can be as unpredictable as the rain. You dress for sun and a sudden downpour arrives. Sometimes we definitely know rain is coming and we can pack an umbrella but sometimes rain, like a flare-up, can appear when the sky seemed so blue. We just weren’t expecting it.

October 13th, 2021

Feeling Accepted With A Chronic Illness

Estimated reading time: 2 minutesWhen I attended my first EDS The Ehlers-Danlos Society conference in Las Vegas in 2017, around 50% of my clients had EDS and hypermobility with pain. I was kindly invited to speak by Lara Bloom CEO of The EDS Society.  I had just released the first online hypermobility course, Strengthen Your Hypermobile Core.

July 18th, 2021

Finding Your Range Hypermobility Podcast : Season 1 Overview

Estimated reading time: < 1 minuteSeason 1 of this dedicated hypermobility podcast has ended, but we will be back in the Autumn with more amazing and inspiring guests. This was my first attempt at a Podcast, and I have absolutely loved every minute of it. I have had the privilege to interview zebras and experts at the top of their game.

May 6th, 2021

Soft is the new strong in hypermobility

Estimated reading time: 2 minutesSoft is the new strong. This seems the total wrong thing – when we feel loose and disjointed, surely we should be bracing to hold it all together. I discovered that led to more pain and fatigue. So I went soft.

January 3rd, 2021

Returning to Health – Our Personal Virus Experience in 2020

Estimated reading time: 2 minutes2020 was an incredibly challenging year for everyone on so many levels. With a history of pneumonia and bronchiectasis I was naturally worried about catching the virus. When things became serious in the UK, my family practised strict isolation. We limited our visits to the supermarket, we washed our hands constantly and carried hand sanitiser when we did go out. We even left our post for 2 days before opening it to limit any exposure.

December 15th, 2020

Enjoy a Zebrastrong Christmas on us

Estimated reading time: 2 minutesWant to take control of your hypermobility in 2021?

This Christmas, The Zebra Club is offering a special Christmas deal. We are offering a Zebrastrong Christmas from the 15th to 26th December and warmly invite you to take advantage of 20% off the retail price on an annual subscription to The Zebra Club.

November 4th, 2020

Join my new podcast – Finding Your Range. Hypermobility and Chronic Pain Uncovered.

Estimated reading time: < 1 minuteI never imagined I would be speaking openly on social media and interviews about my pelvic floor history or recurrent UTIs due to mast cell activation. My upbringing was such that certain things are private and definitely not a topic of conversation. And yet here I am. The reality is this is what life can be like with a condition like Ehlers-Danlos Syndrome.